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Our Beki's son Caleb NEEDS OUR PRAYERS |
Marge Tindal
since 1999-11-06
Posts 42384Florida's Foreverly Shores |
Today I received the following email from our PiP Member, Beki quote:I know that just by asking the prayer angels here ... it is done~ I will let Beki know this link is here so she can come in when she finds a spare moment~ Caleb ... I now lift you in prayer to the most powerful Healer of all time~ Beki~ Know that we are thinking of, and praying for, all of you~ *Huglets* ~*Marge*~ |
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© Copyright 2005 Marge Tindal - All Rights Reserved | |||
Sunshine
Administrator
Member Empyrean
since 1999-06-25
Posts 63354Listening to every heart |
Please, yes, let Beki know that our prayers will be with Caleb and all of the family... This is not good...so please let her know, Marge, if there is anything else we can do? God be with Caleb, his family... this is the time when prayers are heard. . |
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Marge Tindal
since 1999-11-06
Posts 42384Florida's Foreverly Shores |
Karilea~ I have sent her an email letting her know of this thread ... and asking what more we can do~ I did notice on the FIRST BLOG LINK a place for DONATIONS ... ?? ... maybe for some that might be the way to help, as Caleb has no insurance~ I'm sure each will find a way to help ... but I sure will find out from Beki what more is NEEDED~ Prayers are greatly appreciated ... as always~ ~*Marge*~ |
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Sunshine
Administrator
Member Empyrean
since 1999-06-25
Posts 63354Listening to every heart |
I did a quick scan of Caleb's problems, but didn't find the donation link...yet. Thank you, Marge. I am sure that those who can, will help out as they can... in the meantime, we know how powerful our prayers can be...and it seems that from this site? Sometimes they seem a bit more powerful than we ever expect them to be, and in ways that are amazing. Keep us apprised, my friend. |
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Martie
Moderator
Member Empyrean
since 1999-09-21
Posts 28049California |
Joining my sisters in prayer for Caleb. |
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Marge Tindal
since 1999-11-06
Posts 42384Florida's Foreverly Shores |
Karilea and others~ On the first link it appears as this - quote:MAKE DONATION icon just below it. Hope that helps. Me |
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Denise
Moderator
Member Seraphic
since 1999-08-22
Posts 22648 |
Caleb and Beki will be in my thoughts and prayers, Marge. |
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Enchantress Member Empyrean
since 2001-08-14
Posts 35113Canada eh. |
~Stepping into the prayer circle and joining hands in prayer for Caleb & Beki~ |
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iliana Member Patricius
since 2003-12-05
Posts 13434USA |
I'll be praying for Caleb and his family, Marge. I'm so sorry to hear of this. to Beki and Caleb and you |
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Kaoru
since 2003-06-07
Posts 3892where the wild flowers grow |
I don't know Beki very well, but this breaks my heart. Caleb is in my prayers! |
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Nightshade
since 2001-08-31
Posts 13962just out of reach |
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sandgrain Member Elite
since 1999-09-21
Posts 3662Sycamore, IL, USA |
Count me in. It must have been a nightmare as this unfolded into an ugly situation. I'm so sorry. God bless you all. Rae |
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garysgirl
since 2002-09-29
Posts 19237Florida, USA |
And, I join in with my thoughts and prayers. |
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Beki Senior Member
since 1999-09-15
Posts 1569Newport Beach, CA, USA |
Thank you all so much for your concern and most especially your prayers...we know that is what has gotten him this far. The doctors tell us over and over again how amazed they are (but God is amazing isn't He?) because Caleb should not be here....they say perhaps because he is young and, except for the cancer, was very strong...if he were a 40 year old he never would have survived all this. But he has survived, and now we must keep him in prayer until he is completely healed and I have to believe he will be. Today we had a 10 hour benefit concert fo rhim at a local club, 10 top rated southern california tribute bands played for 10 hours with all proceeds going to Caleb. it was an incredible day...Caleb is well known to and well liked by most of the bands who donated their time because he roadies for his boss when his bands play.There was so much love in that club today, and they raised $2500. We are so thankful.. But mostly I am thankful to have had the opportunity to see how much others care about him...how much they really love him too. He appaently touches many many lives we know nothing about...till today. Listening to them speak about him I am proud to be his mother. So... SPecific prayer need tonight...he has been complaining of pain in his upper leg which is new...before it was all below the knee.SO they di dan ultrasound at his bedside and found a bloodclot in his thigh. They are treating it with medication and we hope very strongly it will be gone in a few days. In the meantime, pleas epray fo rhis pain and fo rthe doctors to have wisdom in treating it. Thank you all again..... |
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Gentle Spirit Member Patricius
since 2000-10-09
Posts 13989 |
Holding you all in healing thought and prayer..... |
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serenity blaze Member Empyrean
since 2000-02-02
Posts 27738 |
Mine too... |
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scorpio Member Ascendant
since 2002-10-02
Posts 5178right...there |
Caleb and Beki are in my prayers. believe in what your heart feels... |
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Cloud 9 Senior Member
since 2004-11-05
Posts 980Ca |
Both of you are with me in my prayers.... |
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inot2B Member Elite
since 2000-09-18
Posts 2205Arkansas |
I will remember Caleb and your family in my prayers. |
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luminosity Senior Member
since 2005-11-18
Posts 813 |
oh, sigh...will surely pray for you all |
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Larry C
since 2001-09-10
Posts 10286United States |
Beki, How tragic that your son is so sick. Prayers for courage, strength, peace and healing. |
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Beki Senior Member
since 1999-09-15
Posts 1569Newport Beach, CA, USA |
quick update - well, it seems they will begin radiation on his lung and on the mass near his spine on fri or mon. They seem confident it will wipe out the microscopic cells in hi slung but less sure it will really help the other newer mass. The scan he needs to thoroughly look for cancer throughout his body is an outpatient deal...they don't have that machine at the hospital so ther eis no way to do it. I asked why aren't they rushing him down to do MRI's everywhere at least and they said we can do that so i said then please push for it...but why did I have to ask? why did they not just do that on their own? They seem still very reluctant to deal with the mass in his pelvic area near his spine.,.....I am not sure what they are afraid of. Even now when they are telling us they believe now (they did not before) it is part of the lung disease they do not want to do surgery when theytold us that is ALL you CAN do for this cancer...they seem to think he would not be strong enough but he is very much healed now....better to look and know for sure what we are dealing with I think. We are checking mor einto City of Hope but that is a hard choice to make because it is a good hour away...no one could stay with him all day, we could only see him on weekends I work an hour in the opposite direction so I could never get up there in time to see him after work. And if something happened it would takeme sooo long to get there......if this i s all the time we have I don't want him to be alone somewhere far away. |
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LeeJ Member Patricius
since 2003-06-19
Posts 13296 |
I'm shaking my head in disbelief....so so sorry Beki...you've certainly got my prayers & thoughts as well. |
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hoot_owl_rn Member Patricius
since 1999-07-05
Posts 10750Glen Hope, PA USA |
Sending on some prayers from PA here for all (((HUGS))) Ruth |
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sandgrain Member Elite
since 1999-09-21
Posts 3662Sycamore, IL, USA |
Oh how I relate to your heartache. I'd sure vote for having him at City of Hope even though it's a trek. They are highly rated for cancer work. I went to their site a lot when my dauughter,Rebecca (Whtdove) was undergoing treatment. I'm asking our Lord to give you all strength to endure the treatment. God bless you all. |
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nakdthoughts Member Laureate
since 2000-10-29
Posts 19200Between the Lines |
sending prayers and hope Beki. M |
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Earth Angel Member Empyrean
since 2002-08-27
Posts 40215Realms of Light |
May God and His healing angels be with Caleb and his family. I will keep him in my prayers. Love & Healing Light, Linda |
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Beki Senior Member
since 1999-09-15
Posts 1569Newport Beach, CA, USA |
Thank you all fo ryour continued support and prayers. I am sorry I have not posted anything in so long, we have been busy with the holidays. Christmas was difficult, trying to balance family needs to have some sense of normalcy with Calebs need not to be alone on christmas. Thanks to the friends who came to visit that day..... Last week we received the devestating news that the new tumor is inoperable. At the beginning they told us the only way to fight this cancer was to cut it out, and keep cutting it out when it returns. To tell us they cannot cut this one out pretty much took all our hopes and dashed them on the floor. It was a very difficult week for all of us. This week he is doing pretty well. Yesterday they removed the catheters for dialysis so he is officially through with that.....(happy dance time for the felling of the dialysis machine). His numbers (its always all about the numbers) are all coming down...white blood cells, calcium, etc - all the things they have been concerned about the last two weeks.He has had no fevers, positive blood cultures, infections etc for several weeks now and his kidney function continues to improve, as of yesterday it is working at 60% (after only 20% last week but that number does fluctuate a little based on what he eats etc). He is moving himself around in the bed pretty well even without the trapeze. SO, if you disregard the fact of his cancer, he is oding pretty good medically. He does still suffer the pain in his legs and feet but he says it is slowly getting just a little better. I confess to being concerned about the fact that he says part of his legs ar e numb, I will ask the docs about that friday when I am there. Tomorrow he will have the PET scan we have been fighting for. It is essential to knowing exactly how widespread and where the cancer is. He is anxious about the ambulance ride he will take to the diagnostic center and about the needle they will use to inject the necessary dye. I confess I am terrified about what they will find out. But I also believe we really have to know, especially in order to make the best most informed decisions we can about his care, now and down the road.He i sjust finishing his second week of radiaiton treatments and so far the only side effect is complete exhaustion...the treatments themselves are not too bad and only last about 20 minutes but it is a huge ordeal to go there and come back. He must transfer to a gurney, be pushed through an underground tunnel down the hill to another building. be transferred to the hard cold steel radiaiton table, and then do it all in reverse to get back. He is usually 90 minutes away from his room. He is suffering some pretty heavy depression this week and rightfully so, he has much to be depressed about. He needs support more than ever.... That's where we're at -- his radiation treatments will last about 6 weeks - he is getting 28 days but that does not include weekends and holidays. So far he has had 7 days....25% done. If he were up and walking around I am confident they would send him home and do radiaiton as an outpatient. I believe the only thing keeping him in the hospital now is the fact he is not ambulatory. Oh yes, i fyou do come to see him, be forewarned he has lost a lot of weight, he is down to 159,. less than half what he used to weigh. They told us at the beginning every dau you lay in bed you lose 3% of your muscle mass, and I can se eit is true. He has virtually NO muscles left in his legs...he is so thin his shin protrudes and his calf skin hangs form his bones......his hips are bony and thin.,.....it is very discouraginf to see him this way. I don't know how anyone expects him to stand when there are no muscles in his legs to hold him up. I fear if he catches the slightest cold he will not be able to fight it.....I am trying to ge thim to work on some muscle building exercises with me and to eat more protein to build muscle...mostly he does not want to dealw ith it. ENCOURAGEMENT folks - that is what he needs this Christmas! |
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Marge Tindal
since 1999-11-06
Posts 42384Florida's Foreverly Shores |
Beki~ We so appreciate you coming in and keeping us updated on Caleb~ Our prayer vigil is steadfast ... continuing for Caleb and all of you~ *Huglets* ~*Marge*~ ~*No matter what I search for ... |
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Nightshade
since 2001-08-31
Posts 13962just out of reach |
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Enchantress Member Empyrean
since 2001-08-14
Posts 35113Canada eh. |
And the prayers will continue~ |
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Mysteria
since 2001-03-07
Posts 18328British Columbia, Canada |
I am SO sorry I missed this entire thread, and Beki I wish you all a healing through this. What an incredible outpouring of love and support, which helps in his recovery. I will of course add you and your family to our prayer circle, and wish you all a very Happy New Year. May God bless you all. |
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Earth Angel Member Empyrean
since 2002-08-27
Posts 40215Realms of Light |
Brave Beki, I believe in miracles because I have seen them time and again up close and personal! He needs a miracle and I am praying with all my might that Caleb will get one! May you all hang onto the angel wings that surround you so that you might be lifted above your troubled waters ~ physically, emotionally, ~ and financially. God bless, Love & Healing Light, Linda [This message has been edited by Earth Angel (12-31-2005 01:25 AM).] |
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sandgrain Member Elite
since 1999-09-21
Posts 3662Sycamore, IL, USA |
I was so happy to know an update had been posted, but so sorry to learn of the dashed hope. Miracles do happen and my prayers ask for Caleb and family to receive one. My heart aches for each of you. God bless Rae |
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Beki Senior Member
since 1999-09-15
Posts 1569Newport Beach, CA, USA |
Please add my daughter Charity to your prayers..she was supposed to bring my little granddaughter Gracie to visit her Uncle Caleb for new yearts today and stay the weekend.....she never made it because she ended up in the hospital herself with a blood clot in her lung. Now she will be hospitalized at least 5 days and I have to drive all day and night tomorrow to bring my granddaughter to stay with us...I swear I don't know how much one family is supposed to be able to take but I know I am very near my limit...I cannot be in two states with two kids in the hospital and looking out for my granddaughter and still working so I can make sure Ihave a place to sleep.......much prayer needed and appreciated my friends.... |
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Marge Tindal
since 1999-11-06
Posts 42384Florida's Foreverly Shores |
OhBeki~ To be sure we will add Charity immediately to our prayer vigil~ How much indeed, dear lady .... may God be with you all and give each of you the strength to endure all you have to go through~ May the New Year karma quickly turn about to bring you and those you love some peace and health~ Sincerely with *HUGLETS* ~*Marge*~ ~*No matter what I search for ... |
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Mysteria
since 2001-03-07
Posts 18328British Columbia, Canada |
God never gives you more than you can handle they say, but I know it sure feels like it sometimes, and this would be one of those for sure! May you find the strength and help you also need to accomplish this family task right now Beki, and I sincerely hope the year will soon be so much better for you all. Prayers being said for you all. Take care. |
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Martie
Moderator
Member Empyrean
since 1999-09-21
Posts 28049California |
Becki....you have so much on your shoulders right now...I admire your strength. Love is what makes the biggest muscle, and that's what you've got plenty of. My prayers are with you and all of your family during this difficult time. |
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Nightshade
since 2001-08-31
Posts 13962just out of reach |
May angels surround you and yours with strength and healing light. Prayers continue. hug, Chris |
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Trillium
since 2001-03-09
Posts 12098Idaho, USA |
I'm sorry to be late reading this post and what a sad story it is! You have too much to bear Beki and I am praying that God will be with you every step of your difficult road! Love Betty Lou Betty Lou Hebert |
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sandgrain Member Elite
since 1999-09-21
Posts 3662Sycamore, IL, USA |
Oh my! The seeds of faith need watering now more than ever. The only advice I can give you is to pray your way through and when someone asks if there's anything they can do to help you, say, "Thanks, there is." Whether they can make you a meal, babysit, do a couple loads of laundry or whatever, ASK them, please. How I'd love to gather my bits of time and be there with them to relieve you somehow. God only means for us to be one person. Prayer will continue here and include each of you. Thanks for allowing me to be a part of the prayer chain. God bless you, Rae |
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tracie66 Member Elite
since 2000-01-18
Posts 4713Australia |
Dear Marge, Beki & Caleb I only just found this thread today and Marge knows I've been away from here for such a long time, so I'm sorry I'm only sending my thoughts and prayers now. Dear Beki~ How is Caleb now? I hope he is doing well and have they sorted everything with the cancer, sounded terribly worrying for you both. You are in my prayers. my winged ~hugs~ floating your way Tracie sorry Beki I didn't see the second page and your latest messages. Caleb is certainly doing it rough, I hope the radio goes well for him and that you stay strong, read how your daughter is in hospital as well, can't be easy for you at all. know that you are all in my prayers and I'm thinking of you. ~hugs~ Tracie Love is the life of the soul... It is the harmony of the universe |
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Beki Senior Member
since 1999-09-15
Posts 1569Newport Beach, CA, USA |
I wanted to share a few updates form the last week or so.....caleb finished radiation on friday and we are waiting to begin chemo soon. These ar ethe updates form his blog the last week --- It has been a very very difficult week. On Monday we heard for the first time a realistic, honest prognosis for Caleb. It was devestating but even so I made them tell Caleb what they told us. They have been sugar coating the facts for him and it was time they recognized he is an adult and were straight with him. They say without chemo or if chemo does not work he has 4-6 months --and if chemo does have some effect the best we can hope for is 6 months more.Caleb does not accept this and of course wants to fight with anything he can so he wants to have the chemo. He finishes his radiaiton tomorrow, Dr Hafer cut it short by giving him higher doses all this week when he realized how crucial it is he begins chemo very very soon. And there in lies the current crisis - finding a place for Caleb to get the chemo..I have been running in circles all week as has our friend Rosie while we tried to make it happen.Tomorrow I have an appointment with the doctor medi cal considers his primary care provider and hopefully he will help us put all this into motion. It seems City of Hope is not really an option anymore as they have changed their contracts for the new year and no longer accept his insurance. We are looking at ST Joseph's in Orange I think for chemo now. We will see how that works out. The whole medi cal system is very frustrating to work with. Caleb is progressing well with his physical therapy, as soon as he can walk we will take him home from the convalescent home where he absolutely does not belong. I think he is doing so well with his therapy for 2 reasons, first, he is highly motivated to leave that place, and two, he has no pain in his feet anymore......because they are numb. This would scare me except he seems to be able to move around pretty good. But because there is no longer pain he can stand a little and beging to walk. Amen for that! This week they had him walking the parallel bars a few times (they are about 6 feet long) and that is the first he has walked since he had his surgery. It appears since City of Hope did not work out due to a change in their insurance contracts for the New Year that Caleb will have to receive chemotherapy here in Orange County, and his particular brand of Medi-Cal seems to point to St. Joseph's hospital. So while we were waiting to get that approved through proper channels we hatched a plan to expedite things a little. A friend who knows someone on staff there was told the best way to expedite it would be to get him admitted to the hospital, probably through the ER - then as a patient they would get him whatever doctors or treatment he needs. So we called his "treating" doctor at the nursing home and told him our grave concerns about his kidney (which were very real, I have been worried for days his kidney is shutting down - his urine output is significantly reduced, his urine dark and concentrated, like when he needed dialysis which he had only been off of for 3 weeks, and he was throwing up everything he ate) and he agreed it sounded like there was a kidney function problem so he would send him to an ER. We then suggested since he had to send him to an ER, could it be St. Joseph's...we explained our plan and he thought it was a great idea so he wrote the order to send him only to St Joseph's for possible renal failure. As it turned out, his kidney is doing ok, there is a slight problem but they think it is because of dehydration from throwing up, which means we still don't know why he is vomiting. But they did admit him to the hospital after the ER doctor spoke with his main doctor back at Hoag at length, and promised to a team of doctors would address his needs, including chemotherapy. So we will see where we stand today with all of that. They might not keep him in the hospital but at least we have paved the way for the chemo. Today 1/15 - SInce being admitted to St Josephs caleb has had many tests scans and iltrasounds but he has yet to see the oncologist - they say he will se eus tomorrow. His problem seems to have been severe dehydration and since being poumped full of fluids in the hospital he has not thrown up even once. They want his kidney to be back up to speed with how it was and so will watch him a fe wmore days for that. In the meantime his heart rate jumped to 160 so they put him in a telemetry unit to keep track of that. It is a daily guessing game what will come next but for now he is in the right hospital to get the chemo treatment we seek and we have to trust that part will work out too. I do apologize for not being around but my whole time and energy is focussed on him. I have to confess I am having a really difficult time - it is so hard just to go towork every day when all I want to do is be with him and hold him close. I thank you all for your support - |
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Midnitesun
since 2001-05-18
Posts 28647Gaia |
Beki, we can understand why you might be unable to post often. Sheesh, talk about having too much on your plate! Your resilience and strength is amazing. It isn't much, but I shall light a healing thoughts candle for the whole family tonight. hugs, Kacy |
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Paul Wilson
since 2002-07-07
Posts 4711United States |
I offer my humble prayers to the almighty that he might heal Caleb and give you strength Beki to come thru this ordeal...Paul ~~To share my poems with you is to share my heart with you~~ Paul |
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Martie
Moderator
Member Empyrean
since 1999-09-21
Posts 28049California |
Becki...You are so strong! I admire you and understand how hard this is. My thoughts are with you and Caleb. |
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Earth Angel Member Empyrean
since 2002-08-27
Posts 40215Realms of Light |
Words fail me. I am overwhelmed by simply reading about what Caleb and the rest of the family is going through! I cannot even imagine actually experiencing it! How is Charity doing? Is she home from the hospital now? If it doesn't rain ~ it pours! Just know that there is power in PiP prayer! ~ And weeza prayin'! Linda |
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Beki Senior Member
since 1999-09-15
Posts 1569Newport Beach, CA, USA |
thank you all - yes Charity went home from the hospital after 5 days. We made an overnight trip to poick up my granddaughter and keep her the wek then another overnight trip to take her home after Charity was released. We had great fun with Gracie while she was here. Charity is still fatigued but doing ok, she will have to be on blood thinners for about 9 months and can never take birth control pills again which did not make her happy but now they know she is at risk. I am sure she will be ok. |
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Earth Angel Member Empyrean
since 2002-08-27
Posts 40215Realms of Light |
Beki, your hands may be full ~ but so is your loving heart. That was a close one for Charity! Thank God she got through that one unscathed! ~ Mind you, she going to be inconvenienced by frequent blood tests while she is on anticoagulants. It is unfortunate, but as her doctors advise, it is prudent that she no longer use oral contraceptives. However, using a combination of other means, can be very effective in preventing an unwanted pregnancy. btw, some of them can be quite entertaining! Your grandaughter, Gracie, sounds like a little ray of sunshine to brighten your days with her grace-full ways! I send my love and comforting hugs to you all! Linda P.S. and I'm keeping a steady stream of prayers on the wing! |
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Fee Member
since 2000-08-07
Posts 381Melbourne, Australia |
My prayers and heatfelt offering of support for you and your family. If there is anything I can do, I know sounds stupid for offering, but I mean it. Hugs Fee Expressions, |
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Marge Tindal
since 1999-11-06
Posts 42384Florida's Foreverly Shores |
Beki~ I feel so for all that Caleb is going through~ Still keeping the prayer vigil going strong~ *Huglets* ~*Marge*~ ~*The sound of a kiss is not as strong as that of a cannon, but it's echo endures much longer*~ |
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sandgrain Member Elite
since 1999-09-21
Posts 3662Sycamore, IL, USA |
Happy to learn you did get into St. Josephs and that the vomiting has stopped. Also thank God your daughter is out of the hospital now. Wow, you just have to keep giving the heaviness to God to get through this. My heart goes out to you, and I'll do my best to keep the prayers flowing. God bless Rae |
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tracie66 Member Elite
since 2000-01-18
Posts 4713Australia |
Beki~ You're all still in my prayers ~hugs~ Tracie Love is the life of the soul... |
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