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Preliminary report on my bone scan
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Preliminary report on my bone scan |
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Madame Chipmunk Member Rara Avis
since 2001-12-05
Posts 8296Michigan 
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I know everyone is curious and although I don't have the professional opinion of my doctor... and I don't know when I will have that right now because the results of my scan were inconclusive... We had a talkative technician who was telling us where all of the "hot spots" were, and according to him... There were none on my spine or pelvis...which is VERY good news. But there was one on my right knee which I know is from an old injury... and there is definitely something in my left thigh where I am having the pain... However, he said that it didn't look like a metasteses because they usually show up as solid pieces and this was very diffused. They took another picture of it... this one in 3 dimensions, and I talked to the radiologist afterward and she said that although she couldn't say what it was... that it didn't look typical for a metasteses. It looked more like a shadow, and it could possibly be a bone inflammation or infection. So now, they will probably do an MRI so that they can image it a bit better ( I don't know why they just don't start with the MRI) and if they still can't figure it out then, they will do a biopsy. All of this stuff will take time... and I will probably have to wait to get an appointment for the MRI... And I can't get any treatment for this until we know what it is... and then I will probably have to wait for treatment too *groan* So, right now... I am not sure I will be going to Florida  But starting tomorrow... I am going into "pushy broad" mode and will try to push everyone around so that we can find out what this is before it gets worse... and it has been getting worse daily. At this point... as far as going to Florida is concerned... *grinning here* it would almost be better for it to be a cancer because I know that I could get the radiation done fast... But with my luck... they will probably put me thru all of these other tests and THEN find out that it was a cancer afterall...and by then it will be too late to see everyone in Florida... Maybe we could have another poet meet in Michigan... Thanks so much for all of your prayers  ~ lots of impatient hugs here |
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Martie
Moderator
Member Empyrean
since 1999-09-21
Posts 28049California |
Dear Lyra It is so complicated....finding something out, but I'm so thankful that they have the technology that they do now. I will pray that you are only dealing with shadows...and that your talkative techs are right. Sometimes I think they know more than the doctors. Hugs to you and your impatience. |
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Mistletoe Angel 
since 2000-12-17
Posts 32816Portland, Oregon |
(big hugggssssss) Oh Lyra, I hope the imaging on the test goes alright and soon they can help you, sweet friend, my heart goes out to you and I send many prayers and angels your way as we all reach out to you! (sad sigh) God Bless You, sweet friend! Love, Noah Eaton "Underneath your clothes there's an endless story..." |
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catalinamoon
since 2000-06-03
Posts 9543The Shores of Alone |
Lyra, it sounds like a good thing so far, though I wish you could hurry up and fix the problem. Life is so difficult sometimes. I won't be making it to FLorida either, too many problems around home right now. We have to have another get together in the near future. I like the pushy mode you use to get things done. Hey if we don't push, we get shoved to the bottom of the pile. Prayers and hugs Sandra |
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Madame Chipmunk Member Rara Avis
since 2001-12-05
Posts 8296Michigan |
Martie... the shadows mean something is wrong...but I sure hope that it doesn't mean that its a crazy kind of metasteses because this is such a rare and unusual kind of cancer that even it's bone metasteses look different... thats possible also. I am in a lot of pain now, so I'm almost at the point of saying that I don't even care what it is.....Just fix it please, so I can walk again... but of course I really do care... its just the pain speaking when I say that. ~ hugs and groansNoah... Thanks so much for your caring, and no one cares more than I do about this right now because no one can feel my pain...even Bill Clinton  It only really hurts when I walk or when I get up or sit down...but I think the getting up and down part is from straining my muscles to try to walk without a limp...  ~ painful hugsSandra... So far... so good... but I just hate that word "inconclusive" especially when it comes on the Friday before Labor Day weekend. And I probably won't get that MRI for quite a while so it will be driving me nuts with its inconclusiveness until I do... And then... when we find out what it is (and hopefully its not cancer...but it still could be... we will have to then, figure out what to do about it... and I wanted so very much to go to Florida  ~ hugs of frustrationLyra |
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Paul Wilson
since 2002-07-07
Posts 4711United States |
Lyra... I just wanted to let you konw not a day goes by that I don't think of you...Paul ============================================= Each time I visit these pages of blue I always think of you Have faith in God and he will see you through For you are our special Madame chipmunk of Kalamazoo ============================================= [This message has been edited by Paul Wilson (09-02-2002 08:18 PM).] |
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Madame Chipmunk Member Rara Avis
since 2001-12-05
Posts 8296Michigan |
Thanks so much for that cute verse, Paul... I really appreciate all of your thoughts and caring. This is such a wonderful place because there are so many caring people here. I feel like I am surrounded by a force field of love.  ~ hugs from the chipmunk of KalamazooLyra |
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Enchantress Member Empyrean
since 2001-08-14
Posts 35113Canada eh. |
Lyra~Just wanted to let you know you are still in my thoughts and prayers. ~Healing Hugs~ |
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Martie
Moderator
Member Empyrean
since 1999-09-21
Posts 28049California |
Lyra...about that force field of love...you are!! |
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Nightshade
since 2001-08-31
Posts 13962just out of reach |
Still prayin' for ya little Chippy!! Be brave and keep thinking positive. hugs, Chris |
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Madame Chipmunk Member Rara Avis
since 2001-12-05
Posts 8296Michigan |
Thanks so much for those big hugs, Martie... I can feel the force field of love here and think that I owe my survival so far to that as well as to David. The life expectancy with this cancer is 1 year.... My diagonis was on Sept.19, last year... and I had been having symptoms for several months before that...and I don't know how long before that I had the cancer... This is making me nervous! ~ hugs and force fieldsNancy... Thanks so much for your prayers and your thoughts.... I can feel them  ~ loving hugsChris... Thank you so much for all of your support... I need it so very much. ~ big thank you hugsLyra |
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Sunshine
Administrator
Member Empyrean
since 1999-06-25
Posts 63354Listening to every heart |
Pushy broad mode is right. Seems to be a chipmunk can be very tenacious when it comes to anyone dealing with its livelihood! Chatter away at them and run them ragged in getting things done. If there was ever a chipmunk who could do it, it's you! If you need someone to turn on the heat, just let me know!  |
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Tracey Member Elite
since 2001-08-29
Posts 2808where insanity meets breeding |
Yes, I'd be impatient to get to the bottom of it too. I do hope that it turns out to be nothing. I'm crossing my fingers for you, and you're always in my thoughts and prayers Lyra. You can never win or lose |
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Nan
Administrator
Member Seraphic
since 1999-05-20
Posts 21191Cape Cod Massachusetts USA |
This will be positive news, Lyra... Hang on tight - You're strong..Loveya.. |
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Madame Chipmunk Member Rara Avis
since 2001-12-05
Posts 8296Michigan |
Karilea... thanks for your kind offer to help me push them around... I might need you. Do you think you can hop a plane to Kzoo pretty fast? The pushy broad slept late this morning...but got up without any pain, so I guess it was worth it. In the meantime, David started pushing for me... and he found out that they haven't even read the scan yet and probably won't until later today... ~ let me know if you can make it and we will storm gates of U of M... you with your winking sun and me with my incessant chatter... someone will have to notice us.  Tracey... thanks so much for your concern, and I know that you have been praying etc... I hope that you are right... that it truly is nothing... but I think its a metasteses that just looks different because its a rare cancer... Nan... I sure hope that you are right...and I have a feeling that I won't find out until tomorrow and this is going to keep driving me crazy. How about you making another trip here and along with Karilea and me... we can scare them into giving us my results  We can be 3 pushy broads and just push them to do anything we want... Maybe if we push hard enough, this thing will just disappear. missing yaLyra |
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Elizabeth
Moderator
Member Ascendant
since 1999-06-07
Posts 6871Minnesota |
Lyra, I'm so glad to hear that at least it doesn't so far look like cancer. You're always in my prayers!  God bless America, my home sweet home. |
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Madame Chipmunk Member Rara Avis
since 2001-12-05
Posts 8296Michigan |
Thanks Elizabeth... I really appreciate your prayers... and apparantly need them too! There is definitely something there on that scan... My feeling is that they will make me go through an MRI, for which I will have to wait a couple of weeks and they still won't know anything so they will do a painful bone biopsy and it will turn out to be cancer anyway... and then I will have to go through the radiation treatments... Of course, by this time... I will have missed the poet meet in Florida and I will be totally depressed... I'm sorry to unload on you... but I am so very stressed today... I just wish I could forget about this completely. ~ frustrated hugsLyra |
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Midnitesun
since 2001-05-18
Posts 28647Gaia |
Even tho it's been said that patience is a virtue, sometimes we don't want that much virtue! I sure hope it isn't anything serious, and that you will be able to take that poetic vacation. Hugs. And yes, you have a right to scream, shout and chatter, and be as pushy as you want!!! Sending you happy acorns, Kacy |
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Sunshine
Administrator
Member Empyrean
since 1999-06-25
Posts 63354Listening to every heart |
Lyra, I've been told that when appropriate, I have a voice that makes people stand up and listen. And I don't even have to yell. Perhaps I shall come to K'zoo...visit my old stomping grounds....and shake them till their teeth hurt! |
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Madame Chipmunk Member Rara Avis
since 2001-12-05
Posts 8296Michigan |
Kacy... I think I need those acorns to throw at the radiologists... Can you believe they didn't read my scan today? I am completely outraged!!!!!!!!! Tomorrow, I am going to get up early and start calling everyone in the radiology dept. Thanks for your support... Karilea... Yes, come to Kazoo by all means please please come here... but we will have to go to Ann Arbor to shake those people up because they are at U of M... its only an hour and a half from here. If they don't read it by tomorrow night, we are going to their emergency room. We'll claim that the pain has become intractable and we'll tell them that I had a bone scan on Friday... I bet they will read it then... the only problem is that it will be read by an emergency room doc and not a radiologist. Right now my tail is swishing back and forth with agitation... At this point I am sure that I won't make it to Florida because they will probably do an MRI for which I will have to wait a couple of weeks and than a biopsy... more waiting... and then I know it will be cancer anyway so I wish they would just let me start radiation so I could go to Florida. I have been so excited about that trip for months... and now I feel so let down. I am in too much pain to go right now, and the pain grows worse daily. see ya tomorrow...right!Lyra |
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Auguste
since 2000-02-16
Posts 3953By the sea |
Lyra, they don't do the MRI first because it's such an expensive test and the HMO's want to go the cheap route first. Please calm down and let your nerves settle. Don't imagine the cancer spreading, because in all likelihood, it hasn't. I'm sure the doctors will figure out what is wrong. I only wish that you were able to make the trip to Florida, as I know how very much it means to you. You're in my prayers, always. God bless! *hugs* |
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Larry C
since 2001-09-10
Posts 10286United States |
Lyra, That's just like cancer...always an inconvenience! Courage friend, what will be, will be. If tears could build a stairway and memories a lane, I'd walk right up to heaven and bring you home again. |
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Titia Geertman Member Ascendant
since 2001-05-07
Posts 5182Netherlands |
Maybe it's just an inflammation of a nerve. Last year when I had my ischias, I didn't suffer from pain in my back, but in my groin. First thought I'd strained a muscle because I did'nt connect it with my back. But it appears to be a nerve running from my back to my front leg. Couldn't walk at all. But then one never knows, pain is such an annoying thing. I have to be very careful with my knee too or I will have to sit out my whole vacation, no long walks and such. I wish you the best sweet friend, Titia Like scattered leaves...my words will flow |
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Madame Chipmunk Member Rara Avis
since 2001-12-05
Posts 8296Michigan |
Thanks Michael, I know I know... thats true and in fact, it was I who asked for the bone scan because I thought that would definitely pick it up. Well... it picked up something, and I still have not heard from my doctor. I'm thinking this must be pretty bad because she is probably preparing a speech for me and worrying about how to tell me. I bet there are hundreds of bone mets, crawling up and down my spine too... and if she doesn't call me soon (its been over 2 days plus a long weekend now... 5 days) it will start breathing fire out of my nostrils... and it will grow claws also...  ~ hugs and fumesLyra |
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Madame Chipmunk Member Rara Avis
since 2001-12-05
Posts 8296Michigan |
Larry... I know that you know what waiting is like... It really sucks... and I KNOW, I really KNOW that it is cancer and I will have to have radiation before I can go anywhere... I have been dreaming of this Florida poet meet for months now... and I don't think I'm gonna be able to go... This might really kill me... or at the very least, it might shorten my life by several months. ~ sad nervous hugsLyra |
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Madame Chipmunk Member Rara Avis
since 2001-12-05
Posts 8296Michigan |
I really want to meet you, Titia... If I can't go to Florida, will you come to Michigan? I know its not a nerve inflammation because something showed up on the bone scan... They said it didn't look typical of a bone metasteses... but I'm sure thats what it is. They took another picture of it in 3 dimensions but I am fairly certain that they will send me for an MRI and maybe a biopsy too... I should've figured this would happen. Every time I get happy about something... it all crashes... And now its been 2 whole days that I have been sitting by the phone and I haven't heard from her... so it must be pretty bad because she is probably figuring out how to tell me... ~ hugs and I hope I get to meet youLyra |
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