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Butterflies_dont_cry
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since 2000-03-06
Posts 3733
Michigan

0 posted 2000-03-31 11:58 PM



I would GREATLY appreciate any suggestions on making this better and a title. It is a tribute to a very sweet young man in my life "Pooh"....Shane  is my very dear friends 16 year old son, he and I have formed a bond that hold me like a vice.  Shane was rushed this evening back to the university hospital.  He is awaiting his second liver transplant, he has the same disease that recently took Walter Payton's life.  I have one other small request for the family of Passions.....no matter what belief you have or what God you pray to....please say one tonight for my "Pooh".  Thank you all.  


Oh No....Please not my sweet "Pooh"
Sirens race you to E.R.
I beg....plead...scream...pray..... .why you?
You're so weak...... my fading star

Just sixteen...so very young
But those eyes have seen so much
To Deaths door once....But life clung
When will it all be to much?

Few have the GIFT of one chance
Now...How dare we ask for two?
Up to the heavens I glance
I weep...as my arms hold you.

Mental photos...closed eyes....drift.......
Happy face, eyes bright and clear.
All that gone...You've had one GIFT
One precious chance.....just last year.

The rejection has begun
and now the painful wait.
As I watch the rising sun
Please..... don't let the GIFT come late

An inner battle rages strong
To recieve....one must pass on
This all seems so very wrong
Please "Pooh".....I pray....just hang on.

It's so hard to believe  now
To think........ the unthinkable
But if you'll just please allow
Please remain.........unsinkable

As I hold "pooh"'s yellow  hand  
I hear the nurse's words come
From what seems a distant land
"They have said No"........I go numb.






[This message has been edited by Butterflies_dont_cry (edited 04-03-2000).]

© Copyright 2000 Butterflies_dont_cry - All Rights Reserved
Balladeer
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since 1999-06-05
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Ft. Lauderdale, Fl USA
1 posted 2000-04-01 12:02 PM


What depth and strong emotion you have here, butterfly, and what a sad situation. My prayers are with you......
Aimster
Member Elite
since 2000-02-19
Posts 4297
Charlotte, NC
2 posted 2000-04-01 12:07 PM


butterfly,

oh girl, this touched me so deeply! this kinda emotion is what true poetry is all about! as for what i would change about this to make it better...absolutely nothing. it comes from the heart, so therefore is already perfect as is...as for a title, perhaps something with "pooh" in it...like pooh don't go. help me out with this one guys.

butterfly, i will definitely say a prayer for shane this evening before i go to bed. also my mom is in heaven, and she was a divine lady. shane is ok, she's watching him. i hope that gives u a slight bit of comfort. take care, and god bless.

amy  

 ~Live today as though it were your last but prepare for tomorrow as though it were here~

Roniece Dawson-Bruce
Member Ascendant
since 2000-01-29
Posts 5689
Sydney, Australia
3 posted 2000-04-01 12:09 PM


I too will say a prayer for Pooh and for you - be strong for Pooh - he needs your strength xx  Love Roniece
Elizabeth
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Minnesota
4 posted 2000-04-01 12:30 PM


May God bless you both! Of course I will say a prayer...as I just did. Take care now and keep us posted!


Hugs'n'stuff,
Elizabeth


 "He have his goodness now. God forbid I take it from him!"
-The Crucible


EagleOne
Member Elite
since 2000-03-07
Posts 2829
Between a laugh and a tear...
5 posted 2000-04-01 02:24 AM


As Aimster says, change nothing it comes from the heart. I will pray for Shane and for you. My thoughts are with you both.
Suzanne
Junior Member
since 2000-03-29
Posts 18
Florida
6 posted 2000-04-01 02:35 AM


I dont think your poem needed any help at all. just stay strong and everything will work out for the best. it always does, my prayers are with you
Michael
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Member Rara Avis
since 1999-08-13
Posts 7666
California
7 posted 2000-04-01 03:03 AM


Your poem speaks from the heart and the emotion behind it is very apparent and true.  Nothing more need be said there.  I will definately keep you and him in my prayers tonight.


Michael

ESP
Member Elite
since 2000-01-25
Posts 2556
Floating gently on a cloud....
8 posted 2000-04-01 03:22 AM


This is so heartfelt, it doesn't need any changes! My prayers are with you and your "Pooh".

Love and hugs,
Lizzie


Butterflies_dont_cry
Member Elite
since 2000-03-06
Posts 3733
Michigan
9 posted 2000-04-01 06:31 AM



You are all so kind, and you remind me why I'm so comfortable here.  Thank you for all of your prayers and I'm glad you though it was "enough"....it's hard to read and judge when you have so many tears in your eyes you can't see straight....I'm sure you know how that is.  Thank you again....straight from my heart.

Janet Marie
Member Laureate
since 2000-01-22
Posts 18554

10 posted 2000-04-01 07:25 AM


Butterfly...you are so special...and so loving...the poem is of your heart, change nothing...you know, you and he are in my thoughts and prayers...and heart...it goes unsaid...
love and prayers my sweet friend, jm

Prayers for Pooh

if i had 3 wishes...
i'd give them all to you
if i knew the answers or reasons
i'd know just what to say and do
sometimes things are decided
and we beg to ask the reasons why
sometimes we feel so helpless
all we can do is cry
i wish i knew the sercets
i wish i could take this pain away
i know we aren't suppose to question fate
so instead of asking why, i'll pray.
Prayers of strength and healing,
Prayers of a miracle true...
Prayers of love and patience
Prayers for you, sweet Pooh.
jm



hoot_owl_rn
Member Patricius
since 1999-07-05
Posts 10750
Glen Hope, PA USA
11 posted 2000-04-01 09:59 AM


My prayers are with you both.
Slashed soul
Member
since 2000-03-29
Posts 86
England
12 posted 2000-04-01 10:38 AM


Dont know how you all feel - but can't we have a whip round and send this young man some cash, or gifts (i'll say a prayer anyway).

COUNT ME IN!

10 dollas - to address if thats possible!

What do you say?

Give with your hearts, collectively we can give lots, individually we can give hope!

-Rich-


Slashed soul
Member
since 2000-03-29
Posts 86
England
13 posted 2000-04-01 10:39 AM


Dont know how you all feel - but can't we have a whip round and send this young man some cash, or gifts (i'll say a prayer anyway).

COUNT ME IN!

10 dollas - to address if thats possible!

What do you say?

Give with your hearts, collectively we can give lots, individually we can give hope!

-Rich-


Elizabeth Santos
Member Rara Avis
since 1999-11-08
Posts 9269
Pennsylvania
14 posted 2000-04-01 11:01 AM


Butterfly
Aimster is right. You need not change a thing. The poem is you and it is perfect just the way it is. It contains your heart and your love.
my prayers are with you both
Liz

Nan
Administrator
Member Seraphic
since 1999-05-20
Posts 21191
Cape Cod Massachusetts USA
15 posted 2000-04-01 11:02 AM


Passionate prayers coming your way, Butterflies
WhtDove
Member Rara Avis
since 1999-07-22
Posts 9245
Illinois
16 posted 2000-04-01 11:38 AM


What emotion, had tears in my eyes. I shall keep you both in my prayers! God bless you and him!
CherylLynnMckee
Member
since 2000-03-28
Posts 215

17 posted 2000-04-01 12:04 PM


OH butterflies I didn't see this tell today...this poem moved me to tears...beautifully written...and even thow I am late I have already said a prayer...and will continue to do so.

 

Marge Tindal
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Florida's Foreverly Shores
18 posted 2000-04-01 12:10 PM


ButterfliesDC~
You are such a HUNNY !

Prayers for Shane sent his way.
~*Marge*~


Martie
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Member Empyrean
since 1999-09-21
Posts 28049
California
19 posted 2000-04-01 01:27 PM


Your poem pulls such heavy memory from my heart, for times when we see just how fragile life is...Your poem and thoughts are wonderfully powerful as is your love.  My prayers and thoughts are with you and your Pooh.
Butterflies_dont_cry
Member Elite
since 2000-03-06
Posts 3733
Michigan
20 posted 2000-04-01 03:31 PM



You are all so wonderful....J.M. your poem brought tears to my eyes...of course they haven't been without them since I got the call last night....Marge I looked EVERYWHERE I could think of last night to find a Pooh picture...thanks for being there. Rich you are wonderful and with such a huge heart, if wasn't for people like you I'm not sure where Shane and his mom would be right now.

I wanted to share a little bit more of Shane's story with you...at 6 Shane was diagnosed with Chrone's Disease, usually (not always)this attacks the bowels but in Shanes case it attacked his Liver.  Shane was near Death on his 15th birthday when he received his first liver transplant, he was a new kid....smiles and full of life.  The "Make a Wish Foundation" gave him a 4-wheeler and he found the speed and freedom he hadn't known since he was very young.  Then slowly he began to have set backs....on his 16th birthday they diagnosed him with Chirrohsis of the Liver, He is on a long waiting list for a second liver, and the liver is like the heart....there is no artificial replacement or back up once it stops.  All we can do is wait and pray, last night he became very ill and was taken to E.R. he has an infection in his abdomen that is spreading.  Even if a donor is found the sicker gets the less likely he'll be chosen to receive it (the sickest with the best odds of survival are at the top of the list).  When you are placed on a transplant list there are certain critera that match you with a donor...A young man in the hospital with Shane is awaiting the exact "same" liver, he is ahead of Shane on the list, I shudder to think how Shane's mother will react when the first GIFT comes through...can you imagine?  

I have so much respect for his mother...she is a hardworking  mom....raising two teenagers,  she has only been able to work here and there... 3 days in the last 8 wks due to Shane being in and out of the hospital...She has almost lost the material things due to this...bill collectors only wait so long.  

I'm trying to gather some ideas for a fund raiser...the school has done one for him that was last year following the first transplant, if you have any ideas please e-mail me.

Shane's family lives 3 hours from the University...They thought of moving but Shane wants the quality of life that comes from being around friends and family....His mom doesn't want to take that from him too.

I just wanted to share a piece of my Pooh with you as you share your prayers with him.

Thank you all so much!!


[This message has been edited by Butterflies_dont_cry (edited 04-01-2000).]

Elizabeth
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Minnesota
21 posted 2000-04-01 04:53 PM


Still sending thoughts, prayers, and HUGS your way...

      

Elizabeth


 "He have his goodness now. God forbid I take it from him!"
-The Crucible


thebeautybrat
Member
since 2000-03-30
Posts 114
Florida
22 posted 2000-04-01 04:58 PM


Beautiful poem. My prayers will be for you and Pooh!! The best of luck and a heart full of love form me is for you!! BYE!!
Dark Angel
Member Patricius
since 1999-08-04
Posts 10095

23 posted 2000-04-01 05:05 PM


My prayers are with you BDC and with Pooh.


 What comes from the heart goes to the heart.
Samuel Coleridge



CherylLynnMckee
Member
since 2000-03-28
Posts 215

24 posted 2000-04-01 05:06 PM


I will keep praying...it doesn't always feel like it..but god is always with us in are darkest hours..Hang in there Butterflies..and if theres anything I can do let me know...and thanks for sharing the story of Pooh...I wished their was more I could say or do.

 

Poet deVine
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since 1999-05-26
Posts 22612
Hurricane Alley
25 posted 2000-04-01 05:09 PM


My prayers are with you and his family. Please contact me via email and I'll give you some ideas for fund raisers! Anything else we can do, please ask....
Denise
Moderator
Member Seraphic
since 1999-08-22
Posts 22648

26 posted 2000-04-01 05:31 PM


My prayers are with them too. Your poem is beautiful.

Denise

PhaerieChild
Senior Member
since 1999-08-30
Posts 1787
Aloha, Oregon
27 posted 2000-04-01 07:00 PM


The poem was beautiful but the heart it came from is awesome!!!! You, Shane and his family will be in my thoughts and prayers.

 Poetry~ Words falling on paper, painting a dream.

Shawna R. Holder
Boise, Idaho



Butterflies_dont_cry
Member Elite
since 2000-03-06
Posts 3733
Michigan
28 posted 2000-04-01 08:07 PM




Thank you all once again from the bottom of my heart, I have "Pooh"s web page if anyone would like it please e-mail me, or if you would like an address to perhaps said a Get Well Wish please let me know.

I called Shane's mother tonight and let her know how wonderful each and everyone of you are....She thanks you from the bottom of her heart and is amazed by your kindness.

Shane is not doing well tonight he is in so much pain and is receiving demorol every 3 hours they've not found the specific source of the pain...they are thinking infection but want to run further tests.  Please continue to keep him in your prayers.

All my love to the best "family" that ever lived. Each and everyone of you amaze me with the kindness you have shown me...and Pooh.  His sister is going to pull up this page for him tomorrow hopefully in the hospital....she will be amazed by all of you as well.  

Thank you....does not say it all but it's all that I have to give.

**Angel Wing Hugs**


 Hold me for yesterday
Kiss me for tomorrow
But love me for today.


Elizabeth
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29 posted 2000-04-01 09:40 PM


I'd love to see his website. My email is rosesthorns16@hotmail.com. I will also try to contact you.

With my prayers, Elizabeth
< !signature-->

 "He have his goodness now. God forbid I take it from him!"
  -The Crucible



[This message has been edited by Elizabeth (edited 04-01-2000).]

Lone Wolf
Member Ascendant
since 2000-03-16
Posts 5842
Lansing, MI USA
30 posted 2000-04-01 09:44 PM


Butterflies....what a sweet tribute to your friend.  My thoughts and prayers are with Shane.  If there is anything I can do, please e-mail me and just ask!!  

 Friends are friend forever if the Lord's the Lord of them and a friend will not say never cause the welcome will not end.
--Michael W. Smith

Butterflies_dont_cry
Member Elite
since 2000-03-06
Posts 3733
Michigan
31 posted 2000-04-01 11:54 PM



You are all so wonderful...I will e-mail you with the address, I wasn't sure if it would be inappropriate to post it here so that is why I chose the e-mail method.

LW* you are already doing it sweetone...your thoughts and prayers are all Shane and I could ever hope for right now...Thank you all.

JamesMichael
Member Empyrean
since 1999-11-16
Posts 33336
Kapolei, Hawaii, USA
32 posted 2000-04-02 12:12 PM


Butterfly its lovely that Shane has a friend like you.   I pray that our Heavenly Father will take Shane into his arms and love him and care for him.  I pray that he will pour his healing oil on him.  I pray for strength for his family and friends.   Take care, James
tracie66
Member Elite
since 2000-01-18
Posts 4713
Australia
33 posted 2000-04-02 06:19 AM


I'll say a prayer, for your dear friend
That his body, they will soon mend

When I go to sleep tonight
I'll be thinking of his plight

I will pray that he'll be okay
My thoughts are with you, today

Dear butterflies
I hope your friends son is well soon, and I will be thinking of all of you.



 Keep all the windows of your mind open
Anne Rooks

Meadowmuse
Member Elite
since 1999-12-27
Posts 3263

34 posted 2000-04-02 11:04 AM


Butterfly, we must trust that God hears our prayers for strength, understanding and peace, and that He is holding your Pooh in His loving embrace. You are such a special friend to this young man and his family, one can clearly see that right away. Thank you for allowing us to know about him. I would love to see his website and send him a note, if you can post or send the URL.

My e'mail address is NighMeadow@aol.com

~ praying for you "all" ~
~ Claire

Pepper
Member Elite
since 1999-08-19
Posts 3079
Southern Florida
35 posted 2000-04-02 12:34 PM


My heart goes out to Pooh, his family and , of course you Butterflies ...
He is very fortunate to have such a loving friend  ..
I would like to see his web page also ... my email address is : savana15@webtv.net ....
My prayers are with Pooh ........
....
      ((((((HUGS))))))
Your poem is both compassionate and beautiful ... shows such a golden heart ....

Butterflies_dont_cry
Member Elite
since 2000-03-06
Posts 3733
Michigan
36 posted 2000-04-02 02:35 PM



You all continue to amaze me...thank you all so much.  You have given me hope in the human soul once again.  I will be going to Ann Arbor, the University Hospital to see Shane tomorrow and to give his mom some moral support...and a great big hug.  I should have an update by tomorrow evening.  Here is Shane's web page:  http://www.geocities.com/Baja/Desert/4303/
keep in mind while looking at it that Shane doesn't discuss his illness, he doesn't want pity...only to be treated and to BE like everyother 16 year old living healthy today.  Feel free to send some Well Wishes to his e-mail address, if his mailbox is full and not accepting messages...which happens alot because he isn't home to "clean it out"  you may send them to my e-mail and I'll be sure to forward or print them up for him...as I am planning to do with all of your posts so far I can't wait to bring a little hope and a lot of love to show his mother...Monika will be so touched by all of you.  **Angel Wing Hugs** to the best family ever!!!


 Hold me for yesterday
Kiss me for tomorrow
But love me for today.


suthern
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since 1999-07-29
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Louisiana
37 posted 2000-04-02 02:50 PM


BDC: Your poem is lovely... I'll be praying for you, Shane, and his family. *S*
Elizabeth
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Minnesota
38 posted 2000-04-02 02:57 PM


I'm there now...looks pretty neat!

Elizabeth


 "He have his goodness now. God forbid I take it from him!"
-The Crucible


Aimster
Member Elite
since 2000-02-19
Posts 4297
Charlotte, NC
39 posted 2000-04-02 07:08 PM


I checked out Shane's webpage..was pretty cool! I am still continuing to pray for him, his mother, family, and you butterflies...you all have amazing strength, pull together now...and your family here at Passions will also. Together maybe we can achieve a "miracle". Here's hoping.

Love,
AMY  

 ~Live today as though it were your last but prepare for tomorrow as though it were here~

Butterflies_dont_cry
Member Elite
since 2000-03-06
Posts 3733
Michigan
40 posted 2000-04-03 11:10 PM



UPDATE  

I saw Shane today   I printed off the poems (Mine and the one Janet posted, along with the 17 pages of posts from all of you wonderful people) and gave them to Monika today.  As you can imagine her faith has been tested in all of this and to tell you the truth when I see what she goes to I imagine mine would be hard pressed as well.  She weeped through the poems and the posts as we drove to the Hospital together and then she smiled....she said with all of your prayers she had hope and she knew that whatever the doctor's told her today she knew she could handle, she wanted me to be sure to let you all know that and also wanted to thank all of you...so Thank you  

Shane had an MRI done on his hip today which was negative...praise God!! they feared that the bone was dying due to lack of blood(along with several other "could be's) which could have meant amputation...a surgery he may not have been able to handle.  They are performing another MRI tonight (8:15) on his spine to see if there are pinched nerves.  They also have found staph infection in some of the cultures of his blood and the antibiotics are working...Praise God. Shane's sister said that he is looking and acting better and didn't need as much pain medication today...Praise God.  Your prayers are helping please keep them up!!!!  As long as you want to know I'll keep you updated    We didn't show Shane the poem or the posts due to the sadness of the poem...perhaps when he comes home....this could still be a week or more.  Thank you all for your prayers and for giving Monika the ray of hope she needed today....she hasn't looked that "light" in a long time.. You are all amazing!!!!!! **Angel Wing Hugs** One and All!!!!!

Marina
Member Elite
since 2000-02-10
Posts 2245
Pickering, Ontario
41 posted 2000-04-03 11:42 PM


I wanted you to know that I have been following your story and would like to also send my thoughts and prayers.  One can never have enough prayers!

Marina

WhtDove
Member Rara Avis
since 1999-07-22
Posts 9245
Illinois
42 posted 2000-04-03 11:52 PM


Tears in my eyes. Thank God that the antibodies are working, and the MRI shows negative.

The Lord works...still in my prayers, and thanks for updating us!!

Elizabeth
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since 1999-06-07
Posts 6871
Minnesota
43 posted 2000-04-04 05:17 PM


PRAISE GOD!!!!!

Elizabeth


 "He have his goodness now. God forbid I take it from him!"
-The Crucible


dj
New Member
since 2000-04-11
Posts 1

44 posted 2000-04-11 02:18 PM


I'm sending my prayers out to shane and his family I'm the liver donar mom (son passed) I was hoping this transplant would of helped him get stronger but now all I can do is pray for shane again to keep on going some one out there will say yes to a donar form that will in turn help you again.  My family is also praying for you to Shane. Love Donna

 

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