Member Rara Avis
OK, here's another update after speaking with the transplant team yesterday at Rush.
They are typing my sisters and brother to see if they're a match. This whole process to put in place should take about 3 months he said. So I will continue with chemo until they're ready for me. The "philadelphia chromosone" was present but as for now is like .2 or something, so it could be "background noise" or just a cell left. However the stem cell transplant should take care of that.
Right now he says they're giving me about $3 worth of chemo, when it's time they'll give me about $10 just so I get the idea of how much more I'm in for. I will also get head to toe radiation for about a week with the chemo. I will be hospitalized for about 1 month. For up to at least 6 months I will have no immune system, so he said with infections and all other stuff it's likely I will see the hosp a number of times after I'm actually released. It should take up to at least a year for things to start to function properly.
He told me he won't paint a rosy picture for me that it will be a very rocky, difficult road. He told me he's the only doctor that will make me very sick before he makes me better. When all is said and done with the stem cell transplant, I have a 50%/50% chance of cure. If I use my own, I have a higher chance of relapse after only a year. So my own will be a last resort.
Using my siblings, and using someone unrelated to me will of course increase my mortality rate (30%).
So here we go on a long, long road to what will hopefully bring a cure to me. So your continued prayers and support are very much appreciated.
Hugs and love to all of you!
Thank you for all the cards, notes, "help" you've given us.