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Update on Jay

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Kethry
Member Rara Avis
since 07-29-2000
Posts 9235
Victoria Australia


0 posted 09-18-2003 05:17 PM       View Profile for Kethry   Email Kethry   Edit/Delete Message      Find Poems  View IP for Kethry

Dear all,
I know it's been a while. Nothing much has changed. Jay is still having what are called gelastic seizures (laughing seizures). We are looking at the end of October before anything can be done and at this stage he and his mum April will have to move back to Victoria to have the surgery (I am SOOOO unhappy about that *wink). In the meantime I have decided to quit my job so I can spend more time supporting her. I will update you when I know more.

Thanks for the notes of encouragement and your prayers.

Keth

Here in the midst of my lonely abyss, a single joy I find...your presence in my mind.  Unknown


Sunshine
Administrator
Member Caelestus
since 06-25-99
Posts 67715
Listening to every heart


1 posted 09-18-2003 06:38 PM       View Profile for Sunshine   Email Sunshine   Edit/Delete Message      Find Poems   Click to visit Sunshine's Home Page   View IP for Sunshine


Will your employer just let you take a family leave of absence, Keth?  I know your priorities are straight, and I don't know how much you need, or desire, to work when they return home, just a thought.

But like I say, your priorities ARE in order.  God and Family first.  And God IS watching over you.  My prayers continue for all of you...
Larry C
Deputy Moderator 1 Tour
Member Patricius
since 09-10-2001
Posts 10765
United States


2 posted 09-18-2003 07:10 PM       View Profile for Larry C   Email Larry C   Edit/Delete Message      Find Poems   Click to visit Larry C's Home Page   View IP for Larry C

Keth,
I like Karilea's idea. Hang in there and I pray all goes well for each of you.
nakdthoughts
Member Laureate
since 10-29-2000
Posts 19275
Between the Lines


3 posted 09-18-2003 09:14 PM       View Profile for nakdthoughts   Email nakdthoughts   Edit/Delete Message      Find Poems  View IP for nakdthoughts

I am sorry to hear that nothing has improved for Jay, Keth...but I am happy you will have them close now.

hugsss..thinking of you always
M
suthern
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Member Seraphic
since 07-29-99
Posts 20770
on the threshold of a dream


4 posted 09-19-2003 08:55 AM       View Profile for suthern   Email suthern   Edit/Delete Message      Find Poems  View IP for suthern

Always in my thoughts and prayers, dear friend... just remember to take care of YOU, too... please? *S*
Marge Tindal
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Member Empyrean
since 11-06-1999
Posts 43042
Florida's Foreverly Shores


5 posted 09-19-2003 09:26 AM       View Profile for Marge Tindal   Email Marge Tindal   Edit/Delete Message      Find Poems   Click to visit Marge Tindal's Home Page   View IP for Marge Tindal

DarlingKethry~
Never out of my thoughts or my prayers~
Hoping that October hurries and little Jay gets the exacting care that he needs~

Having them close will be a blessing in so many ways, dear lady~
Hopefully the job thing can be worked out as to what is best for you all~

Love you~
*Huglets*
~*Marge*~

~*When the heart grieves over what it has lost,
the spirit rejoices over what it has left.
- Sufi epigram
   noles1@totcon.com   

Earth Angel
Member Empyrean
since 08-27-2002
Posts 40647
Realms of Light


6 posted 09-19-2003 10:22 AM       View Profile for Earth Angel   Edit/Delete Message      Find Poems   Click to visit Earth Angel's Home Page   View IP for Earth Angel

Thanks for the up-date. You are such a loving protector of your family. I am at least thankful that Jay's condition has not worsened. He has prayers being sent up for him from all around the world.

Love & healing Light,
Linda
Midnitesun
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Member Empyrean
since 05-18-2001
Posts 29020
Gaia


7 posted 09-19-2003 10:33 AM       View Profile for Midnitesun   Email Midnitesun   Edit/Delete Message      Find Poems  View IP for Midnitesun

Hang in there, and know that you have many hearts beating alongside.
Trillium
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Member Patricius
since 03-09-2001
Posts 12129
Idaho, USA


8 posted 09-19-2003 01:32 PM       View Profile for Trillium   Email Trillium   Edit/Delete Message      Find Poems  View IP for Trillium

Kethry:  Still saying prayers for you and your family.  May God bless you all!

Betty Lou Hebert

Mistletoe Angel
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Member Empyrean
since 12-17-2000
Posts 34089
City of Roses


9 posted 09-19-2003 01:50 PM       View Profile for Mistletoe Angel   Email Mistletoe Angel   Edit/Delete Message      Find Poems   Click to visit Mistletoe Angel's Home Page   View IP for Mistletoe Angel



(big hugggsssssss) Oh Kethry, I'm so sorry to hear this, dearest friend, I too had gelastic seizures myself as a child every evening, and had nightmares mixed with them, and I felt they would never end. Then, finally, we went to the hospital to get me checked out and they put me on something called Tegretol, which tastes almost like a Orange Julius, and now I've been off that medication for six years but I have no more gelastic seizures! (big angel hugs) Perhaps you can ask your doctor about Tegretol or other medications similar to that, God Bless You and know we are all sending angel comfort hugs and prayers to your Jay, we all love you so much! You have such a beautiful heart, sweet Kethry, thank you for sharing!



May love and light always shine upon you!

Love,
Noah Eaton


I don't need no proof when it comes to God and truth
I can see the sun set and I perceive

***Live***

[This message has been edited by Mistletoe Angel (09-19-2003 01:51 PM).]

Kethry
Member Rara Avis
since 07-29-2000
Posts 9235
Victoria Australia


10 posted 09-19-2003 04:24 PM       View Profile for Kethry   Email Kethry   Edit/Delete Message      Find Poems  View IP for Kethry

Noah,
Thanks for the advice, My son had Tegretol for a while. Jay has been on Epilum as the doctor did not believe Tegretol would work given that the seizures are caused by a hypothalmic hamartoma (benign tumor)* My I learned a lot of new words.
However the Epilum also is not working and they have beguin to try him on Lamictal, which has lamotrigine in it. We don't know how he will go because the drug is fairly new and there are supposedly a lot of side effects. Anyway I'm hanging in there, looking after myself and doing all the right things to make sure I'm on deck for when April comes across. I think if I'm going to fall apart it will be afterwards, soooo... if anyone wants to hang around with waiting arms then I might need catching before I fall all the way down. *grin

As for the job thing...I think its time anyway.
Keth

Here in the midst of my lonely abyss, a single joy I find...your presence in my mind.  Unknown


Charisma
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Member Ascendant
since 09-30-2000
Posts 6029
lost in blue pages


11 posted 09-20-2003 10:22 AM       View Profile for Charisma   Email Charisma   Edit/Delete Message      Find Poems   Click to visit Charisma's Home Page   View IP for Charisma

((warm hugs)))
prayers for you and your family.

Charisma
NewEnglandlazurlu
Member Rara Avis
since 01-04-2002
Posts 7709
A Mountain Paradise


12 posted 09-20-2003 11:37 AM       View Profile for NewEnglandlazurlu   Email NewEnglandlazurlu   Edit/Delete Message      Find Poems  View IP for NewEnglandlazurlu

Kethry, I continue to keep you all and especially little Jay in my thoughts and prayers.

Try to remain optimistic and hopeful for the best outcome and you know you can count on all of us here to keep the prayer vigil going.

Hugs and luvs, Marti
Kethry will be notified of replies
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