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New status on bone scan
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New status on bone scan |
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Madame Chipmunk Member Rara Avis
since 2001-12-05
Posts 8296Michigan 
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After waiting nervously by the phone for 3 days to find out my results... I finally called the radiologists' reading room for the bone scans and the radiologist I spoke to said that they normall don't give them out to patients... But I had spoken to her right after my scan and she recognized my voice and was shocked that I hadn't gotten my results yet and so she told me that there was a small metasteses right across the top of my left femur (thigh bone) and there were 3 questionable ones on my ribs... 2 of them were perfectly symmetrical which usually means that they are stress fractures... probably from when I had pneumonia and coughed really hard...and the other one I am pretty sure happened from an accident on my treadmill... So the only concern was the one on my femur. Then my doctor found out that I had gotten the results and she called me very apologetically and told me that there were disagreements as to whether my leg was also broken. She told me to go to the emergency room to get an ex-ray right away. 6 hours later, at the emergency room... we finally got the ex-ray... after manipulating my leg and making it really sore...and having to do it over again because the first series didn't come out... the technician told me that there was no tumor...it was just a clean break. Then the physician's Assistant with whom I was working, came over and said that they had gotten a good picture of it and that it was a lytic lesion. So, I have 2 opinions again... but I am sure that it is a lesion. This is terrible news. Lytic lesions are the ones in which the bone is eaten away by the cancer. They don't think that radiation will help it totally and I might have to have surgery to repair it. I don't think I will ever walk normally again and I am really upset because it now really looks like Florida is out for me... and I had been looking forward to that so very much... Maybe some of you can come and visit me, here in Michigan. I am also upset because of the speed at which that thing developed. 3 weeks ago, I was able to go up and down the stairs, now I can't do that at all. I am really scared that it will keep spreading all over my body and that I will die soon. I feel perfectly healthy now...except for my leg... but that was hardly hurting at all a month ago. So, I have to do everything I ever wanted to do in my life... really fast now... If anyone who was going to the poet meet... especially those of you from overseas, can come to Michigan... it would make me feel much better. I know that once this is cleared up, there will probably be another one on it's heels but I might have some time in between to visit other friends who live in the U.S.A. But going out of the country would be too difficult right now.  ~ loving hugs |
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bsquirrel
since 2000-01-03
Posts 7855 |
God bless you, Lyra. My hope for you lives on. Things are as they are, but I hope they change for you soon. Much love to you. Hopefully, my job will send me to Michigan sometime on business -- then I'll finally get to meet the chipmunk poet, and feast on yr famous acorn pizza! In my prayers, Mike |
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catalinamoon
since 2000-06-03
Posts 9543The Shores of Alone |
Lyrs, sweetie, do not think the worst. Since there are differing opinions, it could be ok, yet. I for one am going to try to come see you soon, if there is any financial way. It stinks that you cannot make it to Florida, I can't either. Please try to be calm, and think maybe there is a confusion. I'm sorry you are going through more of this. Love Sandra |
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Martie
Moderator
Member Empyrean
since 1999-09-21
Posts 28049California |
Lyra This news does not sound good...I'm so sorry. I would like to come and visit you, even though I wasn't going to poet's meet. I have been complaining that I am the only person I know that hasn't been on vacation this year. So perhaps Michigan...what do you think? My thoughts remain strong for you with love and prayers. Hugs! |
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Sunshine
Administrator
Member Empyrean
since 1999-06-25
Posts 63354Listening to every heart |
Lyra, M.D. Anderson Hospital in Houston is where you should go. I have been told by those in the know that folks with any kind of cancer go there and walk away with a clean bill of health. I would do all I could if I were in your shoes to get to Houston. Ask your doctors. See what they say. Better yet, check out this site http://www.mdanderson.org/ I don't normally tell people what to do. And I'm not about to push a pushy broad. But...it is a suggestion. Sent with love. And my prayers. [This message has been edited by Sunshine (09-06-2002 07:57 PM).] |
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Mistletoe Angel
since 2000-12-17
Posts 32816Portland, Oregon |
(tears fall down my cheeks) Oh Lyra, my heart goes out to you, believe me, if I could I would fly out in an instant and visit you in Michigan to give you a nice big hug and help cleanse those tears! (wipes tears) I know your heart is breaking right now and how hard it must feel to hear the news from them but continue to be strong for us all, for I believe in miracles and the healing powers of God and I too would follow Karilea's advice as I too have heard of this wonderful hospital! Many times I have heard stories of such cancers suddenly disappearing through prayer, and that is what I will always do for you as you are one of the best friends I've ever had! (rinses tears with hanky) God Bless You, I am always here for you and to help you feela little better, I promise I will call tonight! Love, Noah Eaton "Underneath your clothes there's an endless story..." |
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Mistletoe Angel
since 2000-12-17
Posts 32816Portland, Oregon |
 (sends angel hugs to guide you with comfort and love) Love, Noah Eaton "Underneath your clothes there's an endless story..." |
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serenity blaze Member Empyrean
since 2000-02-02
Posts 27738 |
Lyra...forgive my silence. I simply do not know what to say... sometimes I bless this computer and the internet for giving me the ability to meet people that I might never have been able to know--other times--I despise it for its lack of warmth of touch. I am so sorry. |
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NewEnglandlazurlu Member Rara Avis
since 2002-01-04
Posts 7470A Mountain Paradise |
Lyra, I am speechless. I wish there was something I could say or do to make this all better... I am still going with the positive aspect of the news as I cannot bear the thought of you being ill. Not our perky, spunky little chipmunk. You continue in my prayers and I will phone you soon. Hugs, Marti |
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Nightshade
since 2001-08-31
Posts 13962just out of reach |
Brave, sweet Lyra, Take heart little Chipmunk as things could get better yet. Don't give up hope. I will continue to pray for you and send positive energy your way on the wind. Bless you. hugs, Chris  |
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Poet deVine
Administrator
Member Seraphic
since 1999-05-26
Posts 22612Hurricane Alley |
Lyra, please continue to get everyone's opinion on this. Keep your spirits up, you will stay in my prayers. |
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Midnitesun
since 2001-05-18
Posts 28647Gaia |
with you at this news. But please do follow up on all options and get another professional opinion. It sounds as if there is too much leeway in the interpretation of these tests, and sometimes 'professional' guessing isn't any better than the kind I do. |
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the_loner_23 Member Ascendant
since 2002-06-08
Posts 5479Jacksonville, Florida, USA |
You will be in my prayers. I will write a little something to cheer you up later. Or maybe send you an e-card or something. Cold hands means a warm heart |
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ThunderMage Senior Member
since 2002-06-20
Posts 812Canada |
I wish I could be there for it. What is life without poetry and adventure? |
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Enchantress Member Empyrean
since 2001-08-14
Posts 35113Canada eh. |
Lyra...sweet sweet Lyra...I am almost speechless here... Sitting here quietly saying prayers for a brave and loving soul. Perhaps it is not a lesion..lets not give up hope yet..okay? Prayers and healing thoughts being sent your way. ~Healing Hugs, Nancy~ |
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Magnus
since 2001-10-10
Posts 14135South Carolina, USA |
Lyra, Knowing the power of fear, I know this is a very difficult time for you... Fight the fear with positive thoughts, but don't go to fantasy land on it... Try to approach with logic and reason... If there are other options, viable alternatives, explore them and act on them if you feel necessary. Try to not let it wear you down to where your own body is prone to illness.. This time in your life is taking a terrible toll on you mentally, emotionally and physically. Don't cast judgement until you know for a fact...Gut feel is not always right, nor is an opinion... I wish I could help you through this with more than just words...words I feel you need to hear.. You are in my prayers, have been from day one and will remain in them... Sending a huge hug your way... Barry... |
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Auguste
since 2000-02-16
Posts 3953By the sea |
Lyra, I enjoyed our conversation. I much appreciate your prayers and please know you will always be in my own. You're very special. My prayers for both you and David. God bless you, dear one. *hugs* |
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Titia Geertman Member Ascendant
since 2001-05-07
Posts 5182Netherlands |
Sweet friend Lyra, I second all the above who advice you to get another opinion, certainly when specialists have different opinions themselfs about the outcome. I don't know exactly what a lytic lesion is, have to look that one up, but from your words I understand it's not a thing some one would want to have at all. I'm with you in my thoughts my friend, sending big Knuffels your way. The only way for me to see you is meeting you at the Detroit Metropolitan Airport. I'm flying in from Tampa on Sept. 30 at 12.43pm and then I'm leaving again for Amsterdam at 16.05pm. That's 3,5 hours in between, but I don't even know if I have to go through customs again or not. So I don't know if it would be possible at all to see you. I don't even know how far Detroit Airport is from your place and if you would be able to get there. Please keep your positive spirit up. You know what they're saying: The game isn't over till the last ball has been played, and your game isn't over yet sweet chipmunk, you're still in the game. Hugs and love and knuffels Titia Like scattered leaves...my words will flow |
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Tracey Member Elite
since 2001-08-29
Posts 2808where insanity meets breeding |
I think it’s settled…there must be a poet’s meet in Michigan!!! I for one have some customers that I need to visit in Michigan, so if we can all arrange it for the same time…I think we should definitely put it on the agenda!!! In the meantime…I pray that there is something that they can do for this…and please…I know it’s easier said than done…but please try to keep you spirits up. There is so much that can be done these days. Much love and many, many prayers for you sweet chipmunk. You can never win or lose |
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SmartChick Member Rara Avis
since 2001-09-23
Posts 7081On A Journey To The Unknown |
Oh Lyra, I am so sorry to hear this. I hope you feel better soon. |
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Enchantress Member Empyrean
since 2001-08-14
Posts 35113Canada eh. |
Yes...how about a meet at the 'Magic Capital of the World"? Colon, Michigan...I know Ron can't put us all up...but they do have one motel...I believe.  |
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Duncan Member Ascendant
since 2001-08-07
Posts 5455 |
You are in my thoughts and prayers, Lyra. |
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Larry C
since 2001-09-10
Posts 10286United States |
Lyra, I'll be in Berrien Springs next May!  And I second what Barry says among others. Please don't be so hasty to the negative thoughts. Easy for me to say as I'm not in your shoes, I know. But I will continue to share peace and courage with you as you battle on. You are on our prayer chain here in Arizona. Remember, courage friend.  If tears could build a stairway and memories a lane, I'd walk right up to heaven and bring you home again. |
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Madame Chipmunk Member Rara Avis
since 2001-12-05
Posts 8296Michigan |
Thanks so much, Mr. Squirrel... I hope that you do come to Michigan, and I will make the acorn pizza with maple seed pods salad. But I might need you to harvest the acorns and the maple seed pods because right now I have a little problem with my scamper and its hard to hunt for those delicacies on 3 paws when I am so used to using 4.  ~ furry rodent hugs with lots of acornsLyra |
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Madame Chipmunk Member Rara Avis
since 2001-12-05
Posts 8296Michigan |
Thanks so much, Sandra... I am still going to try to make it to Florida... believe it or not... but it depends on what needs to be done to this leg. I found out that they triaged me up to the top of the list for radiation, but I might have to have surgery to strengthen the bone before they can radiate it. If I don't need the surgery... I might be able to make it to Florida... at least for a couple of the days... But I would love it if you would visit me here also...  ~ loving chipmunk hugsLyra |
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Madame Chipmunk Member Rara Avis
since 2001-12-05
Posts 8296Michigan |
Thanks so much, Martie... I would absolutely love it if you would come to visit me here in Michigan... You could also do a lot of sight-seeing at the same time because this is really quite a beautiful state... especially up north. Sandra says she might come here also... Maybe we could coordinate the timing so that you will be here together... I would love that!!!! My house has room for at least 2 people to stay here.  ~ a heartful of hugsLyra |
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Madame Chipmunk Member Rara Avis
since 2001-12-05
Posts 8296Michigan |
Thanks so much for the suggestion, Karilea... We just might do it for another second opinion.... right now, I have one scheduled at Vanderbilt Univ. with a small cell bladder cancer specialist... And I also might be starting radiation next week or having surgery on my leg... I'll keep everyone updated here... ~ loving chipmunk hugs and tail-swishesLyra |
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Madame Chipmunk Member Rara Avis
since 2001-12-05
Posts 8296Michigan |
Noah... thanks so much for the comforting angel and your shoulder to cry on... and I have been crying a lot lately. First there were tears of frustration and now there are tears of raw fright.  ~ loving hugs of thanksLyra |
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Madame Chipmunk Member Rara Avis
since 2001-12-05
Posts 8296Michigan |
Karen... thank you... and I truly do understand. I think sometimes that I don't know what to say to myself. I look at that healthy old lady in the mirror and wonder how she can possibly be so sick... but, I know that she is... and I just don't know what to say to her and so I just cry... but I do feel your caring through your silence, so please don't feel bad about it. ~ hugs of silent softnessLyra |
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Madame Chipmunk Member Rara Avis
since 2001-12-05
Posts 8296Michigan |
Thanks so much for all of your thoughts, Marti... I can't bear the thought of this disease either. Now that I know what the thing in my thigh really is... I have an image of it as being eaten away by carpenter ants or termites and so I am doing visualizations of myself spraying them with poison and my leg building itself back up again... Where's Balladeer... that bug man when I need him? I have to get rid of these termites and ants. ~ hugs from the chipped old blockLyra |
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Madame Chipmunk Member Rara Avis
since 2001-12-05
Posts 8296Michigan |
Chris... thanks so much for all of that positive energy... its just what I need right now... I've been crying for the past 2 days ~ giant thank you hugsLyra |
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Madame Chipmunk Member Rara Avis
since 2001-12-05
Posts 8296Michigan |
PDV.... Thanks so much for all of your prayers. I am trying real hard to keep my spirits up. I got some new pain pills but they make me real tired and depressed. Maybe its better to have the pain than the depression... ~ loving hugs of thanksLyra |
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Madame Chipmunk Member Rara Avis
since 2001-12-05
Posts 8296Michigan |
Thanks so much, Kacy... My tears really appreciate having a companion Its always easier to cry when you have a friend to cry with you...But now we have a clear picture of whats going on... I had to spend 7 hours in the emergency room on thursday night just to get a stupid x-ray of my leg... This included a lot of endless waiting as well as an x-ray machine which didn't take any pictures after they mangled my leg into some pretty painful positions... and then when they finally got it to work, they had to do it all over again... I guess that might turn into a poem someday... well, at least I can laugh at it now...but it wasn't funny then. ~ hugs of pain and thanksLyra |
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Madame Chipmunk Member Rara Avis
since 2001-12-05
Posts 8296Michigan |
Julie... Thanks for being such a little sweetheart and for all of your caring. This chipmunk really appreciates it, more than you know.  ~ loving thank you hugsLyra |
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Madame Chipmunk Member Rara Avis
since 2001-12-05
Posts 8296Michigan |
Thundermage... Thanks so much for caring, when I don't even know you.... but I guess I know you now... ~ hugs of thanksLyra |
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Madame Chipmunk Member Rara Avis
since 2001-12-05
Posts 8296Michigan |
Thanks so much, Nancy... for your caring and for your prayers... We now know that it is a lesion... Its a small one but its in a very bad place because its on a supporting bone and at the very top of that bone, where its hard to wrap any support around it. So, it looks like they will radiate it but first we have to make sure that its strong enough to handle the radiation... If it isn't, I will have to have some surgery on it first... I had wanted to go to the poet meet, so very badly... I'd been talking about it for months...and had planned a whole trip around it... and now it looks like I might not be able to make it... at least not without a miracle... but, we are sure going to try. ~ hugs from a trying chipmunkLyra |
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Madame Chipmunk Member Rara Avis
since 2001-12-05
Posts 8296Michigan |
Thanks so much for that HUGE hug, Barry... Its just what I needed and just what the doctor ordered... She told me to get myself lots and lots of hugs... She even gave me one, herself... ~ lots of chipmunk hugs comin atchaLyra |
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Madame Chipmunk Member Rara Avis
since 2001-12-05
Posts 8296Michigan |
Thanks so much, Michael... I enjoyed our talk also... and I appreciate all of the love and caring from you and from all of my other friends here... This is so very important to my recovery right now. ~ lots of loving hugsLyra |
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Madame Chipmunk Member Rara Avis
since 2001-12-05
Posts 8296Michigan |
Thanks so much for that information and also for you caring Titia... If we can't make it to Florida... and if I am not sick from anything such as surgery or radiation on Sept. 30th... We will try to meet you at the Detroit airport while you are there. Its about 2 hours from our house, and if I happen to be in Ann Arbor for some type of treatment that day... it will only be about 45 minutes. A lytic lesion is one in which the cancer eats away at the bone. The other kind of cancerous bone lesion which I know of, is a blastic lesion and that one deposits cancerous tissue onto the bone and forms tumors which press on nerves and cause pain. Now I know why mine didn't hurt except if I tried to walk on it. Thats why everyone kept telling me it was a muscle... This is a very sneaky disease... ~ hugs which I hope to give you in person along with those knuffels...whatever they are..Lyra |
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Madame Chipmunk Member Rara Avis
since 2001-12-05
Posts 8296Michigan |
Thanks so much for those prayers, Tracey... I really do hope that we can arrange for a poet meet in Michigan. I hope to know this week, a little more about how my schedule will go during the next few weeks... and, I will keep everyone informed... Our house has space for 2 to 4 people to sleep, depending on whether or not they would like to share a bed. ~ big giant thank you hugsLyra |
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Madame Chipmunk Member Rara Avis
since 2001-12-05
Posts 8296Michigan |
Thanks so much, Sue... You know how much I appreciate your prayers and your thoughts... Please send me your phone number if you can, and I'll try to call you this weekend. ~ loving hugsLyra |
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Madame Chipmunk Member Rara Avis
since 2001-12-05
Posts 8296Michigan |
Thats a great idea, Nancy... Is there a magic show going on sometime soon? ~ magic chipmunk hugsLyra |
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Madame Chipmunk Member Rara Avis
since 2001-12-05
Posts 8296Michigan |
Thanks so much, Duncan.... How about the night shift again? ~ nightshift hugs from my heartLyra |
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Madame Chipmunk Member Rara Avis
since 2001-12-05
Posts 8296Michigan |
Thanks so much, Larry... I sure hope that I am still here and healthy enough to visit with you in Berrien springs next May... all I can do is to pray and keep doing my visualizations... and of course to get whatever treatments are available for this type of cancer... which as far as I know, I've already had. They can fix my leg... but they can't cure the disease which caused it, and so it will keep recurring and I don't know where it will decide to pop up next... which is the reason I am so scared. ~ big big hugs Lyra |
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Balladeer
Administrator
Member Empyrean
since 1999-06-05
Posts 25505Ft. Lauderdale, Fl USA |
Believe me when I tell you, Lyra, I'm here. Not a day has gone by that I haven't prayed for you. I wish they WERE termites and ants. They wouldn't have a chance but you need someone a little more powerful than my potions and I am asking HIM every day to get in there and get the job done. Prayer is very powerful and you have many of them going for you. Hang in there, Madame. There is much love going for you... |
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Nan
Administrator
Member Seraphic
since 1999-05-20
Posts 21191Cape Cod Massachusetts USA |
Dear Lyra... I saw a glorious rainbow embracing you. I'm sure there were glittery angels at each end holding you tight and giving you strength. You're a wonderful lady, dear friend - and I know that you're standing tall. Give yourself a huge hug for me - and give one to Dave for me as well - You're a lucky twosome to have each other. Focus on the good... My prayers for you continue, dear chipmunk lady... OH - and you KNOW I intend to see you on my next visit to Michigan - so take SPECIAL care of yourself... Lots of Love Nancy |
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Mysteria
since 2001-03-07
Posts 18328British Columbia, Canada |
My email is coming on the way to your dear Lyra. I know you are one smart lady when it comes to your health and what is and is not a good decision for you so that is assuring. All I wish to say for now is to try and draw strength from those around you that care, but don't you go giving up on Florida, as you remind me of the "little engine that could" and you will! I know you will. Hang in there we are all here praying for you kiddo. |
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HopeS Member Elite
since 2000-12-22
Posts 4596Perth Western Australia |
Lyra I am here in Australia and its such a long way away , but you remain in my thoughts and prayers each day Hope |
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Madame Chipmunk Member Rara Avis
since 2001-12-05
Posts 8296Michigan |
Thanks so much for all of the prayers, Michael... Oh how I wish those were termites and ants also... But at least I know what it is now... I've had this pain for weeks and everyone kept telling me that it was just muscle pain. I even had a hard time convincing my doctor to set up the bone scan for me... and then she didn't read it for 3 days because she assumed it wasn't anything serious... I guess she was probably more surprised than I was. The miserable thing about cancer is how it masquerades as more benign conditions. But now that we know what it is... We are all ready to take action, starting this week. I just hope there is time for me to go to the poet meet in Florida. I've been looking forward to it for months... Thanks again for your prayers...  ~ angelmunk hugsLyra |
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Madame Chipmunk Member Rara Avis
since 2001-12-05
Posts 8296Michigan |
Thanks so much, Nan... and I am looking forward VERY much to your next visit here... Thanks so much for all of your caring and your prayers too! ~ loving hugsLyra |
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Madame Chipmunk Member Rara Avis
since 2001-12-05
Posts 8296Michigan |
Thanks so much for all of your prayers, Sharon and also for that adorable chipmunk site you sent me yesterday... Right now, I am intending to go to Florida... Hopefully, they can fix my owie in time. ~ big thank you hugs with loveLyra |
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Madame Chipmunk Member Rara Avis
since 2001-12-05
Posts 8296Michigan |
Thanks so much for all of those prayers, Hope. I think that God will be very impressed by all of the prayers coming from all over the whole world... ~ big big thank you hugsLyra |
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amigo Senior Member
since 2001-10-12
Posts 520the earth school |
Lyra dear, my thoughts & prayers are with you...I totally believe in miracles and i'm sure we deserve one here & so we will get it too...pl. don't lose hope...stay 'The Strongest' dear one...healing hugs sent your way... |
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Madame Chipmunk Member Rara Avis
since 2001-12-05
Posts 8296Michigan |
Thanks so much, amigo... I believe in miracles too... and I need one very badly right now, so lets just hope that all of the prayers from all over the world are heard by the right authorities... and then maybe... just maybe, we might get our miracle ~ great big thank you hugsLyra |
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Marsha
since 2000-07-10
Posts 7423Maidstone Kent England |
Lyra darling heart, I too beg you not to let the negative thoughts cloud your mind. Our bodies are delicate instruments at times and the thoughts of negativity can harm us. Please check with as many doctors as you can to see what options are viable. As always darling heart you are in my prayers and I will continue to hold you in them. Que sera sera darling heart, and I truly feel this is not the end not even the beginning of the end, take heart as always Mushy Breathe through the heat of our desire |
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Paul Wilson
since 2002-07-07
Posts 4711United States |
Lyra...The sadness I feel won't allow me to comment other than You are in my prayers...Paul |
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Madame Chipmunk Member Rara Avis
since 2001-12-05
Posts 8296Michigan |
Marsha... We now know that it is a metasteses. It is a lytic lesion, which has eaten away at my bone and weakened it, which is why it cracked... and it was that break which was causing the pain. I know that this week I will either be starting radiation treatments or I will be having surgery to strengthen it so that I can have the radiation and then...I will have the radiation. As soon as I have more details... I will begin a new thread... Thank you for caring so much... I really want to go to the poet meet, but its going to take a miracle now. I also want to live to be old and that may take a miracle also...but I'm not giving up yet... ~ loving hugsLyra |
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Madame Chipmunk Member Rara Avis
since 2001-12-05
Posts 8296Michigan |
Paul... Please don't be sad... because I have no intention of dying, not for a long time anyway... But I do need to get this leg fixed because I'm not the kind of person who can live without the use of my legs. It doesn't usually hurt when I'm sitting down and so I forget about it... and then I get up and the pain just makes me scream. I've finally learned to stand up slowly and to brace myself as I do so. I'm also using a cane right now... I hope that after radiation treatments that I won't have to use it anymore. Then we are going to find another treatment for the whole cancer...because I'm not getting any more of these metasteses... ~ hugs from a temporarily lame chipmunkLyra |
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Ceinwyn Member Elite
since 2000-07-09
Posts 2175VA |
I don't do much wondering around in the forums but I came to this..I'm sorry I'm late on this sweet Lady Lyra!! I really do not know what to say other than you are in my prayers most definately, you seem to be a strong woman, I admire that..most definately tho I don't know you all too well but your words reflect such courage..again I always am late in this sort of thing *sigh* Kristen If at first you don't succeed destroy all the evidence that you tried. |
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