British Columbia, Canada
Lyra (Madame Chipmunk) approached me and asked if I would put this into announcements on her behalf. She had told all her friends how elated she was that her cancer was gone and has now found out some rather bad news that some cancer still remains but the good news is that it is microscopic and there isn't very much of it, but her doctor still wants to remove all of “her stuffing”, including her bladder. However, her doctor is also involved in a phase 1 clinical trial for a cancer vaccine and she is going to try to find out if Lyra may qualify for. There is one problem - Lyra may not be sick enough to qualify as it is usually used as salvage treatment for patients who are too sick for any other treatments. She is tough, and is going to do all that she can to try to get into those trials, as the alternative is a very dangerous life altering surgery, which takes 10 hours and the recovery time from it is approximately 2 months.
Now she wanted to explain what happens if she doesn’t go for the clinical trials, and that would mean them removing her bladder and she would be carrying on her a bag at all times, which as a woman she can’t deal with that aspect of all this. Her worst fear is having people know and adjust all the clothes she wears, but we discussed this at length and came to some fun ways to disguise it if need be J.
She wants to go on the trip to Florida in September so badly that she says and I quote, “It actually might KILL me to miss that because I have been living for that vacation for so long now. In addition to the poet meet, we are going to visit my mother and my cousins in Miami, my high school friend in Washington, DC, and my friend, Rich...who has the same cancer as I have and has had the surgery. He lives in Atlanta...and we are also planning to stop in North Carolina to see Juanita (North Carolina Girl) and her son, Stevie (Sodpossum). I met them at Moontown Cafe, another poetry website and we have been friends for almost 2 yrs.”
Well folks, that is it, and she was scared to tell you this having told you she was okay, can you believe that? Let’s all pray really hard that she gets into those clinical trails and she gets her wish to go to the poet’s gathering in Florida in September. But Lyra, I know you will read this, and if the other is the only option – honey, we all love and support you and you will indeed overcome!
Hugs to Lyra, and thank you all for reading this. I know she would love to get your supportive emails and cards, as she isn’t feeling that great right now with the pneumonia bout and this news, but she had David, (her husband), Victor (her son), and her huge family here to support her.
Thank you all.
Oh, Lyra's email address is: email@example.com
[This message has been edited by Mysteria (07-10-2002 06:27 PM).]